Track Your Success - Community-Focused and Patient-Centered
Choose all of the answers that best fit the approach taken by your project team to engage the community and ensure patient centeredness (try not to select what you think is the “correct” answer!). At the end of each quiz, you will receive an engagement “score” and a “style.” The engagement score benchmarks how well your team includes the community voice, how attuned your team is to your community’s expressed needs, and highlights areas for improvement. The engagement style characterizes your team’s approach to patient centeredness and engaging with communities.
Choose all of the answers that best fit the approach taken by your project team to engage the community and ensure patient centeredness (try not to select what you think is the “correct” answer!). At the end of each quiz, you will receive an engagement “score” and a “style.” The engagement score benchmarks how well your team includes the community voice, how attuned your team is to your community’s expressed needs, and highlights areas for improvement. The engagement style characterizes your team’s approach to patient centeredness and engaging with communities.
How does your team ensure that there is a focus on what the patient community cares about most and is meeting their needs?
We know what the community needs are and have developed a project to address these needs
Patient leader feedback is collected throughout the research process
In addition to patient leaders, feedback is also solicited directly from the community throughout the research process
Community needs and wants are evaluated throughout the research process, and processes are changed as a result of that feedback
The engagement strategy informs some project activities. Where there is not engagement, a good reason for excluding the patient community is clear
Engagement of the patient community is at the core of planning, development, and carrying out activities
How does your team gather all the differences in experiences across your patient community?
When we announce our findings, we hope that they will be useful across the patient community
If communities have sensitivities to the research or healthcare communities, team members address those concerns as needed
Our community advisory groups and partner organizations share many different experiences and perspectives with us
We make sure our team and patient community leaders are representative of the community's cultures and experiences
What structural resources does your team have in place to support participation and inclusion?
Everyone has a space, they just need to be able to speak up
We rely on Memorandums of Understanding (MOUs), engagement-related policies, and procedural documents to make sure our engagement approach is fair and enacted in all parts of the organization
An engagement team is part of the study plan
Engagement needs are part of budgetary discussions
Participants are encouraged to be active in their health and we give them tools for education and self-management
If engagement is important to your team's mission and the success of your team's project(s), is that value shown appropriately in the budget?
Appropriate financial resources are given to engagement
The overall budget is large enough to support necessary engagement activities
Engagement is a central budget item with appropriate funds for leadership, participation, evaluation, and reporting through the entire project
Budgets are split between partners and/or the patient community has decision-making power over how engagement budgets are divided and spent
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